Zoom Autism Magazine ZOOM Autism Issue 5 | Page 26

RON SUSKIND Pulitzer Prize-Winning Journalist, Author and Autism Dad BY SHARON CUMMINGS in reality and in animation, we are the ones being rescued when we discover that all it takes is faith, trust and a little bit of Tinkerbell’s pixie dust for good measure. As a mom to an autistic adult who also learned through the eyes of Disney—the way Ron’s youngest son Owen did—I love learning about other parents’ journeys. Life, Animated is not just a story about autism; it is one about perseverance and HOPE—two words that just so happen to be favorites of mine and Conner’s. This was why I was so excited to have the opportunity to interview Ron and for Conner to be able to interview Owen. (Read Conner and Owen’s incredible interview that follows this one.) While no two journeys are ever the same, I certainly was able to see my family in the Suskind’s story. We at Zoom think you will too. We invite you to get to know Ron and Owen a little better by reading the following interviews, and encourage you to visit their website Life Animated to learn more about the Autism Affinity Project, Affinity Therapy and their book, Life, Animated: A Story of Sidekicks, Heroes, and Autism. ----- S omething mystifying happens the moment you find out you are going to become a parent. Without even realizing you are doing it, you start to imagine what life will be like, who this little person will become, what the future has in store. Ron Suskind, a Pulitzer Prize-winning journalist and author of some of America’s most important works of nonfiction that explore the complexities of the human experience, and his wife Cornelia were no different. They too had dreams for their children, Walt and Owen. We are sure that Ron, being a writer, had created quite a vivid picture too! But before they knew it, that storyline changed and the Suskinds quickly 26 ZOOM Autism through Many Lenses found themselves in a parallel world where they chose to dive down Alice in Wonderland’s rabbit hole into a new, unfamiliar world, a place where they would meet interesting characters, hear enchanting music and learn a whole new language mimicking every magical word from Owen’s favorite Disney movies. An autism specialist once told the Suskinds that they were trying to “rescue their child.” How easy it is for parents to believe that they are the ones doing the rescuing when in reality, just like Ron talks about in his book Life, Animated: A Story of Sidekicks, Heroes, and Autism, sometimes it is unclear who rescues whom. Perhaps, Sharon C.: One of my favorite quotes in the book is one by Owen. “You have to live in the world.” In your book you talk a lot about parallel worlds (real and Disney). Can you explain what you mean by parallel worlds and how you were able to help Owen open the gate and cross over between to the two? of everything in all of those movies, which he was using as code breakers to crack the mysteries of an often inscrutable world. We realized this was happening, but it wasn’t until he was 19 and about to leave home that he let us into this matrix, showing how his interpretations of the movies and what he was “into” at various times helped him to organize and interpret the opposing plane of real events—like two giant circuit boards, facing each other, firing with increasing complexity as he grew and lived. He still marks time by what movies he was into at key periods in our lives. He remembers every time he’s been to the theatre, which is hundreds of times, The thing to remember is that our kids grow on a different trajectory than many of their peers, but they do grow and find new venues and experiences. Ron: When Owen was about seven, we realized that he’d memorized all the Disney movies. Over the years, we began to see that he’d created in his head two enormous grids: one with the events of his life and that of his family and another parallel grid ZOOM Autism through Many Lenses 27