You're Amazing (Summer/Autumn 2016) Summer/Autumn 2018 | Page 8

Supporting kidney disease patients The Tunbridge Wells Kidney Fund has helped to buy new and innovative equipment to improve patient care and outcomes at the Kidney Treatment Centre in Tunbridge Wells, a service run by Guy’s and St Thomas’. Helen Sargison decided to run the 2017 London Marathon for the Tunbridge Wells Kidney Treatment Centre to say thank you for the support given to her father David Sargison who was diagnosed with kidney disease in 1999. David’s kidney function had been rapidly decreasing over a number of years. His kidney disease was diagnosed following a biopsy at Guy’s in 1999. In February 2016, Helen’s mother Marcia was assessed as a compatible kidney donor and the go-ahead for transplant surgery was given. David’s kidney function improved dramatically within a few hours. David said: ‘Since the transplant surgery, my kidney function has been far higher than it was before my initial diagnosis in 1999. I now feel far less tired than I have for many years, I have renewed energy and enthusiasm for life and I’ve even done some gentle digging on my allotment! I can’t be grateful enough to Guy’s Kidney Department and, of course, to my wife and daughter’. Helen wanted the money she raised running the Marathon to be specifically used to support the Kidney Treatment Centre. Thanks to supporters like Helen, the team have been able to buy new and more efficient machines to measure blood pressure and check patients’ oxygen saturation level. Although Helen said preparing for the marathon took many months and a lot of hard work, in the end she managed to raise an enormous amount of £6,993. I felt immensely proud to have been able to run the Marathon for such a remarkable charity. Sign up for an event at www.supportgstt.org.uk/events 8 New James Dunn at the new centre with his parents Lesley and Kenny, far left, clinical nurse specialist Chris Bloor and Professor Jemima Mellerio Rare Diseases Centre Patients from across the UK with rare conditions can now be treated in a brand new facility at St Thomas’, thanks to donations The Rare Diseases Centre at St Thomas’ Hospital is the first of its kind in the UK to provide a space designed for adults and children with life-long genetic and skin conditions that affect many organs in the body. The new centre brings together several specialist services in one place, saving time and improving patient experience. James Dunn, 24 from Liverpool, has the skin condition epidermolysis bullosa and was one of the first patients to be seen at the Rare Diseases Centre. He said: ‘The centre is very bright, modern and spacious. I love the communal area – it’s more open and sociable now. It’s brilliant that, for the first time, we have our own space and everything we need is done here without moving around – it makes life much easier.’ 9