WNY Family Magazine April 2019 | Page 48

One Parent’s Experience — by Lisa A. Beach How a Pool Party Sparked a Wave of Gratitude T he simplest moments can often spark the most beauti- ful memories and the biggest waves of gratitude. My wave started with a splash in our pool. One hot summer afternoon, I incon- spicuously peeked out my kitchen win- dow to catch a glimpse of the five teens splashing around in our pool with my 18-year-old son. I could barely contain myself as I watched the group bat around a beach ball, jump cannonball-style into the pool, and laugh as they horsed around with one another. I felt like my heart would simply explode with happiness, triggering a tsunami of gratitude that made me weak in the knees. What’s the big deal over a little pool party? For years, I’ve ached to hear the sound of teens laughing on our back porch while they munched on snacks, cranked up some tunes, or played board games. I’ve craved to watch a bunch of kids swimming, playing pool volley- ball, or floating on inner tubes. I looked forward to a crowd of teens raiding my fridge when they crashed at our house for an overnighter. I’ve yearned for even a handful of friends to just hang out at our house on a Friday night to watch a movie 48 WNY Family April 2019 or play video games with my son. But in four years of high school, this never happened for my son. Not even once. Why? Because my son has Asperg- er’s Syndrome, an autism-spectrum dis- order that often delivers a deadly blow to a teen’s social life. People with Asperg- er’s struggle with communication and social skills, missing out on the nuances of facial expressions, body language, and social cues. In a nutshell, they are often socially awkward, and other kids pick up on this. The result? They struggle most of their lives to make and keep friends. While this always hurts (for both the kids and the parents), it’s especially painful during the teen years, when the impor- tance of a social life peaks. Most parents don’t think twice about their teen’s friends hanging out at their house — it’s a no-brainer because it happens so effortlessly. It’s just a normal, take- it-for-granted part of adolescence. But for parents of teens with Asperger’s, it’s anything but normal. And we think about it a lot — it’s called wishful thinking. Back in elementary school, things were different. My son’s social life was more like a pre-arranged marriage, with playdates set up by moms on a weekly basis. Birthday parties included just about everyone in the class. Trips to the playground involved nothing more than a quick phone call to coordinate. I didn’t know it at the time, but elementary school was the golden age of acceptance, where kids didn’t seem to pay much attention to differences. But around middle school, the so- cial landscape changed dramatically. Birthday party invitations ceased. Tex- ting and lunchroom conversations about the weekend replaced mom-coordinated playdates. Before he even realized it, my son was left out. As a mother, it broke my heart to watch my son sit home by himself just about every weekend since middle school. I get a lump in my throat just thinking about it — not just the social exclusion and the loneliness, but how this has pum- meled my son’s self-esteem. He’s such a great kid, but the other kids never both- ered to dig beneath the social awkward- ness. While other kids made plans with each other to go to school dances, movies, and parties, they never invited my son. In- stead, he stayed home on Friday and Sat- urday nights hanging out with our family. I think his loneliness hit me harder than it did him. But then, this little pool party hap- pened. Going way out his comfort zone, and ignoring his past social track record of