TREND Fall 2016 | Page 19

Education Policy they are tasked with doing. Let’s invest in school buildings for the next generation. Let’s give schools resources, teachers and support staff to teach and serve all kinds of children to truly differentiate so that ALL learners can get an excellent education tailored for them in their neighborhood. Let’s feed kids healthy food. Let’s give kids exercise. Let’s teach kids music and art and languages. Let’s make neighborhood public schools hubs of our community where all families can access services and build communities together. Let’s value parents as partners, engage them and care for them. We need to highlight all of the small successes happening in our schools. There are thousands of success stories every single day that are never told. Why? Because they cannot be measured by data or packaged prettily in a school board report. To me, as a mom, success is being told my daughter was kind to a friend who was sad. To me, success is being told my daughter raised her hand and spoke out when she was nervous. To me, success is that my daughter, who struggles to read, read a little bit better today. Because of my public school, she will be kind. She will be curious. She will take risks. She will be open-minded. Let’s celebrate that. Let’s highlight all those many things that truly matter in the life of a child’s development. Yes, perhaps I am an idealist. But even if we can’t, as a nation, get our head around the simple fact that our schools need money and funding, then we, neighbors, can make changes in our own schools. By “invest” I don’t mean just with money. Yes, we need that. Lots and lots of that. But we need to invest ourselves. Our time. Our talents. Us. Everyday Americans. Each of us, every single one of us, have power to make change for public education. There is a school in your neighborhood. Find it. Reach out to that school and find out how to do your small part. Go read to a child. Bring the teachers bagels or Target gift cards or just a card that says “thank you.” Pull weeds on the playground. Buy some books for the library. Anything. Want more information on dyslexia? • Follow Anna on Twitter @athorsen16 • Join Decoding Dyslexia - TN on Facebook • Visit understood.org and dyslexia.yale.edu • Watch the TEDed video “What is Dyslexia” by Kelli Sandman-Hurley and the HBO Documentary “The Big Picture - Rethinking Dyslexia” (both available for free on YouTube) Facilitating a Collaborative Spirit By far the hardest part of the journey of being a parent of a child with a special need is collaborating with schools when negotiating accommodations for a child. As a parent advocate, you have to be fierce and tireless. You have to be deeply educated in your child’s disability and your rights under the federal, state and district laws and regulations. Many parents of children with special needs say they feel so much stress because they are their child’s mom, IEP case manager, tutor, advocate and lawyer, all wrapped into one and piled on top of all of the other demands of work and family life. It is overwhelming, and many parents don’t have the luxury of time at the end of a busy work week to dedicate themselves to being the all-around expert on their child’s education. After years of playing all these roles, parents get worn out and really must struggle to work to build collaborative relationships with schools. To make matter worse, oftentimes schools don’t see the human side of these parents. They don’t look deeply at parents to see that, ultimately, they are stressed out, alone and exhausted. Especially by the time middle and high schools come around, schools don’t realize that some parents have been having this same fight, making these same arguments for 10+ years. It can really lead to strained relationships. Building a collaborative relationship takes a lot of work, and it is not easy. At all. I certainly do not always do a good job at it myself. Especially when I am tired, angry and stressed out as a mom. But, what I always tell parents is that you are stuck, for better or for worse, working with your school, your teachers and your school administration for a year or years. You need them to not write you off as a crazy parent. Next Steps I have asked the Dyslexia Advisory Council to create an email account or some other means to seek input from teachers and parents. We must hear from across our counties to know if our law is having the needed affect for our struggling children. What I hope that Tennesseans will soon come to see is that dyslexia is an issue that matters to all Americans. It’s the leading reason why 1 in 5 of Americans cannot read. The National Institute of Health (NIH) has declared the lack of ability to read as a public health issue. According to Dr. Reid Lyon of the NIH, poor readers are more likely to be on welfare, be teen mothers, be in our prisons and have mental health problems. A 2006 study found that students with dyslexia are 3 times more likely to attempt suicide. A study in Texas prisons found that 80% of prisoners have dyslexia. Personally, I would love to see the Council focus on educating our public about what dyslexia is and what the signs are. Many people think that reversing letters is not the most common sign of dyslexia. It’s not. Many students have severe dyslexia but never reverse letters. Some students have a mild case while other continued on next page