The Leaf THE LEAF May-June 2017 | Page 20

'I gave my dying son cannabis to ease his cancer symptoms and he made a miracle recovery' reveals mum Callie Blackwell woke once more expecting to find her son Deryn lying dead next to her. The pair were sleeping just yards apart in the hospice bedroom where Deryn had been sent to spend his final few days. 'What have I got to lose?' Callie Blackwell speaks about secretly giving dying son Deryn cannabis oil The couple tracked down a dealer, met him at a service station, who gave them some cannabis which they took home and cooked on the family hob in a pressure cooker following instructions they’d found online. From it they created an oil and it was Callie who placed a tiny amount of it in Deryn’s mouth. It worked and calmed him immediately. But what is truly extraordinary happened next. Because the family’s hospice wait went on and on. And on. Until very slowly Deryn’s condition improved. And today he is a happy and healthy 17-year-old studying catering, with friends, a girlfriend and enjoying everything life has to offer. The total transformation in her once so sick son still seems to bewilder Callie. But it is testament to the ferocious love and determination of one extraordinary mother. He was in extraordinary pain. His frail body was battered from round after round of chemotherapy and radiotherapy, he was hooked on the painkiller morphine, was unable to eat, covered in sores, nauseous and had lost all his hair. It was 70 days since his last bone marrow transplant and it hadn’t worked. The family knew all too well no transplant had ever grafted after more than 50 days. There was no hope left. And, after a relentless four-year battle with a one in a billion form of cancer, even Deryn was losing his previously indefatigable spirit. “The doctors had said there was nothing more they could do,” says Callie, 37, who lives in a small Norfolk village near Bury St Edmunds. “We celebrated Deryn’s 14th birthday in hospital and then went to the hospice to wait.” Then, as Deryn hovered between life and death, Callie and husband Simon took a huge decision. Unbeknown to medical staff, they decided to give their son cannabis to ease his pain and anxiety. "I’m not here to say cannabis can cure cancer or is a miracle drug", says Callie, a thoughtful and intelligent woman who was studying to become a nurse before Deryn’s last illness. "But it did help Deryn and so I think we need to ask, ‘could it help others too?' "I do think there needs to be more research into what cannabis can do. In some American states and across Europe it can be used. "Obviously, it is illegal so I was terrified if anyone found out what I was doing I could be stopped from seeing my dying son or lose my younger son Dylan to social services. But I had to try it. And it worked." Deryn’s story It was the first week of the school summer holidays and Deryn was 10 when the family’s life first changed for ever. "Deryn had always been so incredibly healthy, he’d never had a cold, never had a day off school, was training with the local rugby team and was the strongest, fittest boy in his year. HE loved that.