Research
We All Have a
Different Disease
(continued from page 2)
All Fox Insight activities are
governed by strict regulatory
and ethical review standards for
clinical studies.
VALUE BEYOND
DISCOVERY
Fox Insight also can help
navigate the personal Parkinson’s
journey. The Fox Insight
Community tool offers a
snapshot of the aggregate data
from all Fox Insight participants
(e.g., most bothersome and
frequent symptoms, family
neurological history) so users
can benchmark their own
experience against that of others.
And because nearly two-thirds
of patients in a 2014 survey
reported that online tools would
be helpful in making physician
3
Thu
appointments more productive,
Fox Insight generates
appointment reminders and
reports from volunteers’
questionnaires to help prepare
for upcoming doctors’ visits.
Fox Insight also will leverage its
large, diverse cohort to amplify
the collective patient voice in
approval and reimbursement of
new treatments.
Regulators and payers
traditionally have relied on
periodic clinical assessments to
make decisions about approving
and reimbursing new therapies.
Today they increasingly rely on
PROs and Health Economics and
Outcomes Research (HEOR)
information to holistically
understand the potential impact
of new treatments in real-world
clinical practice and day-to-day
life with disease.
impact of a proposed treatment
on quality of life or an
individual’s ability to perform
everyday activities. Even after
products are on the market,
PROs can provide a picture
of patients’ satisfaction with
treatment and factors that may
affect compliance or the need
for additional research and
development.
MORE THAN 7,000
VOLUNTEERS ALREADY
ENROLLED
Fox Insight launched in beta in
March 2015. More than 7,000
volunteers (80 percent with
Parkinson’s) have contributed
data that helped the Fox
Insight study team optimize the
platform for the study’s official
launch in fall 2017.
Visit foxinsight.org to learn
more and register today.
PROs provide complementary,
credible data on the actual
Each month, join our Third Thursdays Webinar
Series to hear medical professionals and people
with Parkinson’s disease (PD) discuss life with PD
and the Foundation’s work to accelerate a cure.
Log on, listen to the discussion and submit
questions to be answered by our panelists.
Can’t make it to the live presentation? The full
archived series is available at michaeljfox.org/
webinars.
CONTINUING MEDICAL EDUCATION CREDIT IS AVAILABLE FOR LIVE
AND ARCHIVED PRESENTATIONS.
10
The Fox Focus