The Culture of Different MKTG_150064494_2018 Service Line Big Book Full_FIN | Page 52

PA G E 5 0 The Culture of Different N E O N AT O L O G Y NICU Tele-Discharge Now Available for PCPs For medically complex neonates being discharged from the NICU, the transition of care from neonatologist to primary care provider (PCP) is integral to maintaining appropriate medical therapy. In 2015, Children’s Colorado neonatologist Jeanne Zenge, MD, led the launch of a tele-discharge program using a secure video chat software for smartphones, tablets and computers. Now, when the Children’s Colorado NICU discharges a baby with a medically complex condition, a multidisciplinary team can interface with the PCP. Caring for Families with Difficult Diagnoses With donor support, nurses in the NICU have created a palliative care room with a queen-size bed, artwork, a privacy screen and furniture. It offers families a home-like setting so they can bond with their baby for as long as they need. “It’s a more personal way for pediatricians to ask questions to neonatologists and other subspecialists,” Dr. Zenge said. “It’s our way to supply the pediatrician with as much information as needed to provide the best medical home environment.” Different from hospice, palliative care offers an emotional, spiritual and psychological support team reserved for families with difficult diagnoses, but patients are not necessarily terminally ill. The goal is to help families find peace during a time of crisis, which could mean talking them through difficult decisions or helping them make memories with their baby. “ We have some very extraordinary teams here and specialists that can treat just about any condition.” THERESA GROVER, MD Medical Director, Neonatal Intensive Care Jeanne Zenge, MD, interfaces with a pediatrician as a patient and his parents prepare for his discharge. Cesarean Section with ECMO Standby for Severe CDH Mothers of infants with severe CDH who have a survival rate of less than 20 percent will no longer undergo an EXIT to ECMO procedure. Instead, a cesarean section is scheduled with ECMO available in the delivery room for infants that cannot be stabilized by conventional means. This takes place in the Maternal-Fetal Care Unit where experts stabilize infants on ECMO prior to transfer to the NICU. With this approach, survival has improved from less than 20 percent to 80 percent for this subset of infants with severe CDH. The Culture of Different 51