The 10 Leading Patient Engagement Solution Providers in 2018 Leading Patient Engagement small - Page 21

LEADING 1 10 PATIENT ENGAGEMENT EN The “ We focus on education and training to increase the capacity and capability of patients to understand and contribute to medicines research and development ensure the optimum development of medicines and access to healthcare. Words of Gratified Clients EUPATI’s strength lies in its construction as a public- private partnership and as a collaborative multi-stakeholder consortium of patient organizations, the pharmaceutical industry, academia, and not-for-profit organizations hosted at the European Patients' Forum. EUPATI’s products are not only designed by multi-stakeholder teams but also delivered by them. This ensures that the company can offer the first- hand experience of patient engagement for both the ‘sides’ of engagement. Being a customer-centric company, EUPATI has made many clients satisfied with its services and solutions and below are few of them. · “EUPATI has been a game-changer in the empowerment of patients because we can see people trained by EUPATI almost everywhere, be it in regulatory committees, industry-led research projects and clinical trials, academic projects or ethics committees.”-Jan Geissler, Patvocates & LeukaNET. · “The expert training course is certainly a unique asset and achievement with almost 150 patient experts trained and more on the way. They are the ones who can really actively participate in all the decision points with the industry, regulators and HTAs [health technology assessment bodies]. Beyond that, I think the toolbox on medicines R&D, the material that is available on the website and now used by more than 1.2 million people worldwide, is a huge achievement and allows everyone around the world to use the high Solution Providers 2018 quality-controlled material.”- Matthias Gottwald, Bayer Pharma Elevating Employee’s Growth by Rendering Diverse Opportunities EUPATI provides a unique opportunity to the individuals involved on behalf of their organizations in the public- private partnership to form relationships with other experts across their own and other stakeholder groups. This melting pot of personalities, perspectives, and expertise not only gives EUPATI its strength, expertise, and authority but also empowers and develops its members to drive effective co- creation and engagement within their own organizations. This would also encourage its employees with a strong network that provides endless continuous professional development. The professionals at EUPATI work together to bring its pieces of the medicines R&D puzzle together to ensure that EUPATI trained patients have the necessary broad- spectrum knowledge to represent their communities. EUPATI strongly believes that- “The essence of Patient Engagement is about co-creation and partnership. Therefore, Patient Engagement Solution Providers need to walk-the-walk themselves, designing their solutions as a partnership between patient experts and others. This ensures that the solutions put in place meet both the needs of the companies and the communities with which they are engaged, ensuring expectations are met for all, and effective medicines development occurs to bring made-for- purpose medicinal products to market in a safe, efficient, and cost-effective way”. Upcoming Plans Today, patient engagement is being recognized across the industry as being a necessary component of modern medicines development. EUPATI initially developed the capacity in the patient community in Europe to build the community of patient advocates that are able to engage at an expert level. With this approach, pharmaceutical companies and patient organizations are recognizing their lack of infrastructure and capacity to implement systematic patient engagement throughout the life-cycle of medicines R&D. EUPATI has set a framework for patient engagement with four stakeholders i.e. pharmaceutical industry, ethics committees, regulatory authorities, and health technology assessment bodies in 2016. Since publishing them in Frontiers in Medicine in 2018, EUPATI will be rolling out training programs aimed at these stakeholders ensuring that the things will be executed flawlessly. December 2018 19