State of Caring | Page 6

STATE OF CARING REPORT 2016 Practical support The care agency pulled the care from my mother with only seven days’ notice. I was forced to accept direct payment as no alternative care agency could be found. Without practical support with caring from health and care services, carers cannot get the time they need to look after their own health and maintain relationships with others. Replacement care for the person they support is essential in enabling carers to juggle work, study or have hobbies and interests alongside caring, or to manage care with other family responsibilities such as childcare. Without this support, carers are often pushed to breaking point and have to give up work, stop caring, or even go into hospital themselves. 8 out of 10 (78%) carers buy or receive some form of practical support with their caring role, be that equipment, technology, a break from caring or help from family and friends. However, 1 in 5 carers (20%) who are providing 50 hours or more of care each week are receiving no practical support with their caring role. Direct payment increased slightly but still not enough to cover the level of care required. The amount of ‘free time’ has been cut following the withdrawal of council funding to Mencap. Our son was able to go away for one or two weekends per year and attend two social clubs, two evenings each week during term time. This is no longer available. 1 in 5 20% of those providing 50 hours or more of care each week are receiving no support with their caring role. Less respite per year means having less quality time with my husband. Day care has been reduced so having to care for more hours, feeling tired and stressed. The social worker who assessed my wife said all direct payments in the borough were being reduced. We discussed the needs and were advised we would be informed of any change. Without warning or notification the budget was cut by 30% immediately. 06