State of Caring | Page 10

STATE OF CARING REPORT 2016 Experiences of receiving an assessment Looking at the assessment approach, over half (53%) of carers felt that their ability and willingness to provide care was not properly or insufficiently considered in their assessment or the support they received. Only a third (36%) of carers felt that support to look after their own health, both mental and physical, was thoroughly considered as part of the assessment process and only a third (33%) felt their need to have regular breaks from caring was properly considered. 6 in 10 (63%) felt that the support they need to provide care for others (such as non-disabled children) was not sufficiently considered. This rises to 74% for those whose main caring role is for someone with disabilities or serious illness who is under 18. The area which most carers found was not properly considered as part of the assessment or the support received was the support needed to juggle care with training or education. This was followed by support needed to remain in or return to work alongside caring – in fact 74% of working age carers did not feel that this was sufficiently considered as part of the assessment. The assessment is just a piece of paper and I have no help. I was told I was lucky to be able to work at all, that I should ask my employers (who are very tolerant already) to schedule me in a way that enables time with my partner. I stressed this absolutely would not meet our needs and was immediately rejected for any help around the house. Lots of good ideas but no support is really available and if you cannot get care for the disabled person none of it can happen – no funds. Support following an assessment 21% of those who had an assessment said they received little or no helpful information or advice and felt they did not know where to go for support with caring. 45% felt they got some but not all the information they needed. 11% of those who had an assessment in the previous year said they had been asked to pay for services to support them as a carer and 35% reported that the person they care for has been asked to pay towards their services. Almost half (47%) of carers say that it is struggle for them to afford the cost of care whilst 8% of carers pay for care because the person they support cannot afford it. All assessment areas were considered by my assessor but due to cuts there was no support they could practically offer me. I was listened to but there was no positive outcome. 1 in 5 Whilst the Care Act in England brings in strong new rights around assessments for carers, it does not mean in practice that carers are feeling the benefit. The strong message that came through in the feedback was that carers feel their assessment might look at their need for support but this did not mean they received support as the outcome of their assessment. 21% of carers in England who had a carer’s assessment said they received little or no helpful information or advice and did not know where to go for support with caring. Many carers felt that the money or services is not there for the local authority to provide them with the support their assessment found them to need so the assessment ended up feeling like a tick box exercise. It is fundamental that carers’ assessments lead to positive outcomes and give carers the support they need, rather than just acknowledging their need. 10