We found out the same way you did! I cried for an hour, visited him in the NICU and took him home 5 days later. I never did one inch of internet surfing or book reading. I didn't need to. I didn't do anything different with him vs his older sister.
He cried, pooped, peed and cried some more. Today he walks, runs, writes, reads, counts, plays, knows every word to every Pixar movie ever made, loves music, and is the biggest and brightest star in my sky!
All I recommend is getting him into therapy asap such as speech, occupational, and physical therapy. I started our son at a month old. It changed everything for him!
The doctors will guide you and tell you things like what they have a higher chance if having, but it is info to have, as scary as it can sound.
We have routine blood work done as does everyone else, he has a cardiologist who keeps an eye on his heart just in case, and a pediatric eye doctor just in case he ever needs glasses. He has great doctors, who probably love him as much as I do, and that is important.
The love he will show you will always be the purest and most sincere love. Always be his advocate. Always be on his side and don't let anyone see him as a diagnosis. He is a precious little boy first! My son is 7 now and I could never imagine my life without him.
He has made me a better person, so keep your head up. All these feelings will pass. You are in for a wonderful treat!!! - Chrystal W.
My daughter is 47 and was married on her 40th birthday. She lives such a happy life in
her little apartment with just a few hours of support a week.
She is loved by many, admired
by all and has enriched so many lives. You will love watching your little boy become the best he can, just the same as every baby born.
- Cindy A.
It will be difficult at times, but it will be worth it. Just like loving and parenting any child.
There will be unique challenges, frustration, exhaustion, confusion. Most importantly there will be love. Crazy, overwhelming over the top love - your son will bring that out in you- the difficulties will cultivate it... And much more. There will be sorrow at times,
but so much more joy.
- Kris S.
My son was born a few weeks
ago and hours after his birth the doctor
suggested that he be tested for T21. The results
came back positive. We have been in the NICU
since he was born as he needs oxygen but will be getting
discharged in the next week or so, possibly with Oxygen.
I have been reluctant to do any research regarding Down
syndrome, I think I am still in denial.
Where should I start?
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