SCDAA 41st Annual National Convention Program Booklet | Page 6

THURSDAY, SEPTEMBER 26, 2013 12:15 p.m. – 1:15 p.m. 1:30 p.m. - 2:45 p.m. MARAC MEETING………………………………….Executive Boardroom
Invitation Only

SCDAA LONG-TERM PARTNERS………………………….Grand F - H “Sickle Cell Programs and Policy Progression “ ? “Growth in SCD Outreach” - Health Resources and Services Administration (HRSA)................................Donnell Ivy, MD, MPH
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“Progress in SCD Public Health Initiatives” - Centers for Disease Control and Prevention (CDC)........................Lisa Richardson, MD “Advancements in Research” – National Heart Lung & Blood Institute (NHLBI)......................................Harvey Luksenburg, MD “Incorporating the Patient Voice into FDA’s Regulatory Processes” – Food and Drug Administration (FDA) “Building Strong Alliances” – American Society of Hematology (ASH) ...........................................................................Matthew Gertzog

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2:45 p.m. - 3:15 p.m.

LEGISLATIVE UPDATE……………………………………….Grand F-H Moderator: Etta Coleman “Understanding the Climate of Congress – How It Affects Getting the SCD Treatment Act Reauthorized” Bell, Heroux, PC