Link June 2018 Volume 27 Issue 3 - Page 17

ndis 19, puts me in bed and opens up expertise in NDIS plan management was Rachel’s plan manager and a box of Roses Chocolates on my and coordination. support coordinator, and describes table. I savour the smell of chocolate “I’ve come a long way since I was suddenly enveloping the room. My in that locked-in state, thanks to the breathing is delayed, but the smell support of my family, my fantastic knocks my senses out of the park. therapists, and the team at Plan The foiled wrappers in red, blue, Partners,” she said. orange and pink beg me to eat them. Rachel as a ‘true champion’ and a ‘wonder woman’. “She has fought her way back and continues to do so,” Cherie said. Plan Partners supports NDIS “And while I still have a way to go, participants like Rachel to navigate How could she?! This is chocolate. I’m quietly optimistic about what the the NDIS framework and to explore Chocolate! She gives me one parting future may bring. greater choice and control in their task. Get a chocolate. Oh, hell yeah. “Four years ago, I had three major I’m trying this. She leaves them on goals in life: to walk, talk, and to fulfil my weaker side and goes. a lifelong dream of being an author. “I lean – failing – to my right “Now that I’ve had my book providers and their supports. “A big thing for Rachel and her family and having three children was preparing meals,” Cherie said. against the bedrail. I reach across published, I can tick one big goal off my body with my left arm but my left my list. Hopefully one day, I’ll be able the kids at 7.30pm when her husband shoulder can barely raise my arm. to walk and talk, and hug my thre e got home from work. Now the carers My arm’s a dead weight. I inch my children tight and tell them how can help prepare meals and Rachel arm closer – creep, thud, creep, thud much I love them.” gets involved in that for as much of – and awkwardly wrap my fingers “Rachel was having to wait to feed the task as she can. around a chocolate. I have it! I stop Plan management to gather my breath. That was hard As Rachel transitioned to the “I’ve been able to see Rachel’s speech develop in leaps and bounds work. I put one end of the wrapper NDIS, she enlisted the support of during the time I was with her. And between my teeth and pull using my Plan Partners to help manage her while she’s not at the end of the good hand. The chocolate unwinds in NDIS funds and connect her with journey, it’s incredibly rewarding to my hand. This is my kind of physio!” the best service providers for her see her make so much progress and situation. achieve her dreams.” Rachel said she was able to connect with the ideal health Cherie Cordina from Plan Partners specialists and use her NDIS funds to access them. Rachel received her NDIS plan from the Government late in 2016. “My planner is someone who never worked in health before, but I am lucky, for I strike someone who listens and within a day my plan is sent away to a number-cruncher who never meets me,” she writes. “This scenario can’t work for everyone. How do you judge a patient on paper? Luckily for me, the plan on face-value offers hope for me to live as normal a life as I can.” Rachel accesses the NDIS using Plan Partners, a national group with Rachel's next goal is to walk and talk, and hug her children tight. Opposite page: Rachel Capps (right) with Cherie Cordina. ndis 17