Link June 2018 Volume 27 Issue 3 - Page 16

ndis SPADES OF DETERMINATION Rachel Capps was a high- story “in all its gritty details” in the my progress was excruciatingly slow book, Spades of Determination: and painful and at times I thought it suffered a brainstem stroke A Locked-In Journey. was never going to happen. “Try to blink. Try to move. “But gradually the narrative in’ state – unable to move Nothing,” she writes of her initial started to come together, and with three months in intensive care after each experience and obscure detail the stroke. of the road to recovery that I wrote flying lawyer when she and was left in a ‘locked- anything but her eyes. T Rachel spent 15 months in hospital and rehabilitation before being able desire to finish my story. Not only shared her journey of ongoing to return home to her family. was it therapeutic for me, I hoped it recovery in a book she wrote on her iPad using just one finger. Rachel was 41 years old in 2013 “In those early days, I was would help stroke survivors and their completely in the dark as to what to families by shedding light on the expect,” she said. recovery process.” when she suddenly had the stroke “Everything written about the lying next to her husband Shane in subject was about the big things, but involved several treatments, including bed in the early hours of the morning. I couldn’t find anything that went into hydrotherapy, a specialist dietician, Doctors didn’t expect her to live, let the day-to-day experiences. occupational therapy, speech therapy alone be able to move again. Rachel said it was during the 16 down, I became driven by a burning he Sydney mother-of-three has “As soon as movement slowly began creeping back, I set to work Rachel’s recovery journey has and physiotherapy. She shares a physiotherapy early days after her stroke, that she writing. I could only move one finger story in her book: “My physio Elyce decided she would document her and wasn’t able to lift my shoulder, so pushes my wheelchair back to room ndis