Link December 2018 Volume 27 Issue 6 - Page 35

Ricky Buchanan, pictured opposite page and right, hopes to help herself and other bedridden patients. Ricky said that there is no intake method to capture this on referral to GP clinics and there is also no national or international body representing this patient group. “Without this evidence, it is very difficult to advocate for change,” she said. Ricky also analysed existing Federal Health Department legislation and guidelines from The Royal Australian College of General Practitioners (RACGP), allied health "Wouldn’t it be awesome if I could change the world, how cool would that be? I think I can make things better.” standards of care and requirements from Centrelink and the National May. The Minister replied in a Disability Insurance Scheme (NDIS). letter outlining a number of policy bedridden, I’m in pain, it sounds like initiatives which are being trialled for hell – but it’s not,” she said. ‘Just Invisible’ is the 35-page “My life is super-good. I’m document which bears the fruit of homebound or bedridden people. that research. There are 18 practical These include the Healthcare Home supported adequately you can do recommendations from hospital program and the Chronic Care great stuff like writing a 35-page access to telehealth, co-ordinating initiative as well as providing better report! Wouldn’t it be awesome if Webster packs, travel arrangements information on transport assistance I could change the world, how cool and the bedrock of the service – a and the coordination of specialist would that be? I think I can make good relationship with your GP. appointments. things better.” Ricky sent this to Jill Hennessy MP, the Minister for Health in linkonline.com.au Ricky hopes that her report will make a difference. “I do great stuff. If you are www.notdoneliving.net/ justinvisible issues 35