issues
Ellie-May (left); Colin Lane and
organisers (below left); and the
luncheon in full swing (right).
Dr Massie was able to maintain
the light-hearted manner of emcee
Colin Lane while providing plenty of
information about cystic fibrosis.
The good news is that there are
now drugs that activate the key
protein that causes cystic fibrosis
(CFTR) but only for some patients
(about five per cent). Double and
triple combinations of the drugs are
being developed to help the majority
Since cystic fibrosis can be an invisible disease,
it is essential to get the word out about the
need for a cure and fundraising plays an
important role.
of patients and the trials look
They use social media to promote
promising. Scientists are also working Included in the ticket cost was on a gene-based treatment with trials the meal, drinks, goody bag and live it (Charity and Fun for Everyone
taking place now. Others are aiming music. Guests could also contribute Facebook page) and word of mouth
to develop a therapy based on stem to the cause through a raffle, silent is invaluable.
cells. So, it is possible that a cure will auction (one wall of the foyer was filled exist one day. with a wide variety of gifts to be won invisible disease – Ellie-May looks
by auction), and mystery balloon sale. well and many people don’t know
Dr Massie also encouraged
the crowd to dig deep and give
The organisers work tirelessly to
Since cystic fibrosis can be an
about her life – it is essential to
generously, pointing out that this make the event a success and they get the word out about the need
was a good example of effective are indebted to the generosity of for a cure and fundraising plays an
philanthropy, meaning that their those who donate time and expertise, important role.
money was going directly to the including this year Colin Lane, Dr www.cysticfibrosis.org.au
cause being promoted. Massie and the band RollerToaster. www.cure4cf.org
linkonline.com.au
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