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autism P rofessor Liz Pellicano, now a Project Leader for Autism CRC, looked at five years of autism research during her time working in the United Kingdom. She and her team surveyed people with autism and the autism community and found a gap between knowledge and impact. That is, the majority of research was basic science, rather than helping to find solutions to immediate challenges, or identifying, utilising and celebrating strengths. While the community valued this research, very little of it had been translated into real life practices and policies. What people with autism really wanted, was evidence-based research around everyday challenges, such as how to get a job and keep it, how to navigate public transport and how to keep themselves safe. Professor Pellicano said: “Involving people with autism and members of the autism community in research NO TOKEN EFFORT should be consistent with their values, tailored to their needs and relevant to their everyday lives.” Professor Pellicano is talking about the concept of genuine coproduction; an approach where researchers, practitioners and Twenty years ago, research papers on autism were hard the community, share power and medical publications database, PubMed, shows that in the end of the project to facilitate the to find. Then something happened. A quick search of the responsibility from the start to the year 2000 roughly 500 papers were published on autism, best use of all new knowledge. but by 2016 there were a staggering 3,500. But has this explosion of scientific research in autism translated into improvements in people’s lives? 32 should be essential. All research autism Dr Wenn Lawson, a qualified psychologist, author of 20 books, researcher and co-chair of the newly formed Australian Autism linkonline.com.au