Journal of Rehabilitation Medicine 51-4inkOmslag | Page 43

Health and functioning in the SCI population in Finland: FINSCI study
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Table III. Overview of the Finnish Spinal Cord Injury Study questionnaire instruments to assess body functions
ICF code ICF category Instrument Number of questions
b130 Energy and drive functions PROMIS Fatigue SF8a 6
b134
b152 Sleep functions
Emotional functions PROMIS Global Health
PROMIS Sleep Disturbance SF8a
PROMIS Emotional Distress Depression SF8b 1
4
7
b280 Sensation of pain PROMIS Global Health
SCI-SCS 1
2
PROMIS Pain Interference S6b 4
PROMIS Pain Intensity S3a 1
1
1
1
b455
b525 Exercise tolerance functions
Defecation functions PROMIS Global Health
PROMIS Physical Function
SCI-SCS b620 Urination functions SCIM-SR
SCI-SCS 3
1
b640
b710
b730
b735
b810 Sexual functions
Mobility of joint functions
Muscle power functions
Muscle tone functions
Protective functions of the skin SCIM-SR
SCI-SCS
SCI-SCS
AIS
SCI-SCS
SCI-SCS 1
1
1
1
1
1
SF: short form. The number thereafter indicates the number of questions in a measure, and the letter indicates the version of the SF. FinSCI: Finnish Spinal Cord
Injury Study; SCIM-SR: Spinal Cord Independence Measure – Self Report; ICF: International Classification of Functioning, Disability and Health; PROMIS: Patient
Reported Outcomes Measurement Information System.
Secondly, the questionnaire was formulated. The final
questionnaire consists of 151 ICF-linked questions. The
overview of questions is presented in 3 tables (Tables III,
IV and V). The tables show the 43 preselected FinSCI
data-set ICF categories, the instruments and the num-
ber of final questions. These categories are covered by
124 questions. Altogether, The FinSCI study includes
64 categories because the SCI-specified measures and
PROMIS Global Health were included as a whole. The
additional 21 ICF categories, which include 27 questions,
are not shown in the tables. In addition, some sociode-
mographic and background information is collected.
Body functions are covered by 39 questions from
3 SCI-specific measures and 6 PROMIS short forms:
Table IV. Overview of instruments in the Finnish Spinal Cord Injury Study questionnaire to assess activity and participation
ICF code ICF category
Instrument
Number of questions
d230
d240
d410 Carrying out daily routine
PROMIS Satisfaction with Social Roles and Activities SF8
Handling stress and other psychological demands PROMIS Illness Impact Positive
Changing basic body position
SCIM-SR
1
6
2
d420 Transferring oneself PROMIS Physical Function
SCIM-SR 4
3
d445
d455
d465
d470
d510 Hand and arm use
Moving around
Moving around using equipment
Using transportation
Washing oneself PROMIS Physical Function
PROMIS Physical Function
SCIM-SR
SCIM-SR
FinSCI research group
SCIM-SR 3
4
1
2
2
2
d520 Caring for body parts PROMIS Physical Function
SCIM-SR 3
1
d530 Toileting PROMIS Physical Function
SCIM-SR 3
1
d540 Dressing PROMIS Physical Function
SCIM-SR 1
2
d550 Eating PROMIS Physical Function
SCIM-SR 6
1
d570
d640
d660
d770
d850
d920 Looking after one’s health
Doing housework
Assisting others
Intimate relationships
Remunerative employment
Recreation and leisure PROMIS
PROMIS
PROMIS
PROMIS
PROMIS
PROMIS
PROMIS
FinSote 1
7
1
1
1
2
2
1
Physical Function
Self-Efficacy for Managing Symptoms 8a
Physical Function
Satisfaction with Social Roles and Activities 8a
Satisfaction with Sex Life
Ability to Participate in Social Roles and Activities 8a
Satisfaction with Participation in Discretionary Social Activities
SF: short form. The number thereafter indicates the number of questions in a measure, and the letter indicates the version of the SF. FinSCI: Finnish Spinal Cord
Injury Study; SCIM-SR: Spinal Cord Independence Measure – Self Report; ICF: International Classification of Functioning, Disability and Health; PROMIS: Patient
Reported Outcomes Measurement Information System.
J Rehabil Med 51, 2019