DEBRA focuses its work in three
areas:
• They provide an enhanced
specialist EB Nursing Service,
to deliver optimal healthcare to
children and adults living with
EB.
• They provide social care
support to help people live
with dignity. This is a service
parents and people with EB can
call on, to reach out for advice,
advocacy
and
emergency
grants. We provide access
to specially adapted holiday
homes and opportunities for
social interaction.
• They support pioneering
research to find effective
treatments and, ultimately, a
cure for EB.
Wendy Grant and Sandy Bailey
were the only two fundraisers
who actually walked the whole
60 kilometres and had been in
training for several months before
the event.
“It’s a great way to get fit” Wendy
remarked “and raise money for
such a worthy cause. Anything
that we can do to help make
lives better for people with this
debilitating skin condition is
worthwhile. We’re very grateful
to all our sponsors, especially the
Spangles girlies, for helping us to
raise an amazing 410€, which went
towards the final grand total of
5,600€ for DEBRA. Without your
support people with EB would not
benefit from these services.”
Spangles also raised a further
545€ at their February singout at
the C Breeze cocktail bar in Playa
Flamenca.