Fibromyalgia & Chronic Pain LIFE Summer 2013, Issue 9 - Page 16

A Letter to Patients with Chronic Disease Image courtesy of Antony Rufus|Dreamstime Dear Patients: You have it very hard, much harder than most people understand. Having sat for 16 years listening to the stories, seeing the tiredness in your eyes, hearing you try to describe the indescribable, I have come to understand that I too can’t understand what your lives are like. How do you answer the question, “how do you feel?” when you’ve forgotten what “normal” feels like? How do you deal with all of the people who think you are exaggerating your pain, your emotions, your fatigue? How do you decide when to believe them or when to trust your own body? How do you cope with living a life that won’t 16  Fibromyalgia & Chronic Pain let you forget about your important, but trust me, it is. frailty, your limits, your You scare doctors. mortality? I can’t imagine. But I do bring something to the table that you may not know. I do have information that you can’t really understand because of your unique perspective, your battered world. There is something that you need to understand that, while it won’t undo your pain, make your fatigue go away, or lift your emotions, it will help y Ը%ӊéɵѥݥѡЁݡԁɥ͕ɔѡԁՙ쁥ӊéѠѡЁ́ѼѥѡԁՍͥȁѡԁٔѡи%Ё䁹Ё͕)MյȀ()9$ЁхЁѡȁ͕͔ȁѠ$ЁхЁѽ́Ʌѡ́ѡȁݱ$хЁȁչхЁѡЁٕ役͔͕́Ѽ̰ЁѡЁ䁑ѽ́ɽݔɔɵݡѼѽȁȁ]ɔЁ%а䁽́ɔٕ䁥͕ɔ݅ѥѼѡɵѥݡЁѕȰɥѡɅ͔ѡ͔ݔ]݅ЁѼɔ͕͔Ѽٕ̰ٔͅѼѡѡ()1((0