Colorado Fetal Care Center 2017 Overview and Outcomes CIMFH_160133591_2017-07_CFCC 2017 Overview and Out | Page 28

PATIENT EXPERIENCE LEVEL IV Neonatology We care for any condition that might affect a newborn, regardless of how rare or critical. We care for their families, too. To help them through this stressful time, our providers round daily at each baby’s bedside and offer parents 24-hour access to their baby in a setting as close as it can feel to home. Named one of the country’s top centers by U.S. News & World Report, our Level IV neonatal intensive care unit offers the highest level of care to nearly 1,200 newborns per year — one of the highest patient volumes in the nation. With the growth of our fetal care team, the complexity and acuity of our patients continues to increase, but our outcomes remain above the standard. Advancing the field Neonatal Intensive Care Unit (highest level of care) 1 of 11 recognized centers worldwide The ONLY center in the intermountain west to receive this level of designation The ONLY pediatric center in Colorado to be recognized on any level TYPE OF SURGERIES Breakdown by Organ System • ECMO heart-lung bypass Among our achievements: • Leaders defining surfactant replacement for premature babies’ lungs 28 Salem was scheduled for a C-section, but her water broke early and Evelyn arrived at 35 weeks. Complicating matters, the sac holding her organs ruptured, which meant she needed surgery immediately to put her organs back into her body. “She was born with all her organs on the outside because her personality was too big to fit them all inside,” Salem jokes. Still, Evelyn blossomed. Without having to work so hard to breathe, she developed a playful personality and an easy smile. • Hemodialysis and peritoneal dialysis for renal failure or severe metabolic diseases • Early adopters of brain and body cooling in perinatal brain injury The Steppigs met with several fetal experts, including Kenneth Liechty, MD, co-director of the Colorado Fetal Care Center, and Michael Zaretsky, MD, Medical Director of the Maternal Fetal Care Unit, who reassured them they were in good hands. Evelyn went on to have seven surgeries within three weeks to enclose her organs. Even after they were placed inside her midsection, there wasn’t enough room for her lungs to easily develop. The day before Thanksgiving, she went back into the operating room to be fitted with a tracheotomy to help her breathe more easily. • High-frequency oscillatory vent ilation for severe respiratory failure • Innovators in the development of optimal nutritional strategies for low birth weight babies Evelyn Steppig spent the first eight months of her life at Children’s Hospital Colorado, seven of them in the neonatal intensive care unit. An ultrasound detected a fetal anomaly when Salem Steppig, Evelyn’s mom, was just 13 weeks pregnant. At 16 weeks, after more tests, doctors discovered that the baby had a large omphalocele, a condition in which her bowels, liver and part of her stomach were growing in a sac on the outside of her body. We offer the most innovative technologies in neonatal medicine, including: • Pioneers of inhaled nitric oxide therapy for pulmonary hypertension Born with Omphalocele, Evelyn Steppig Blossoms 57.19% 14.54% 7.43% 5.65% 3.07% 4.85% 2.26% 1.45% 1.45% 0.48% 1.62% Abdominal and GI Thoracic Non-Cardiac Genitourinary Airway Head and Neck Central Nervous System PDA Ligation Skin and Soft Tissue Open Heart or Vascular Musculoskeletal System Diagnostic or interventional cardiac catheterization As Evelyn continues to grow, there will be more space for her organs to develop at a more typical pace. She will have spinal surgery for her scoliosis, which also developed before birth, along with the removal of her trach, around 2 years of age. “Hopefully, by the time she’s 3 years old, you’ll never be able to tell that any of this had ever happened,” Salem says. The Steppig family credits the doctors, nurses and staff in the NICU with keeping Evelyn alive, healthy and happy. “They loved our daughter like she was their daughter,” says Salem. “You don’t realize how much you need this hospital until you actually need it. We are so lucky to have this in our backyard.” Colorado Fetal Care Center 2017 29