CONDITIONS - CDH
Congenital Diaphragmatic Hernia
Congenital diaphragmatic hernia ( CDH ) affects approximately one in 2,500 live births , and can be associated with other genetic syndromes or anomalies . It ’ s relatively rare , but often devastating . Essentially an opening in the diaphragm , CDH allows abdominal organs to migrate into the chest cavity , severely constricting the development of the lungs — the condition ’ s most troubling effect . It ’ s often diagnosed in the second trimester if an ultrasound shows abdominal organs in the chest .
CDH SURVIVAL | 2012 - 2016 *
Above national benchmarks in all categories
97 %
81 % CDH Survival Rate
81 %
42 %
80 % CDH survival with congenital heart disease
All CDH CDH - No ECMO CDH - ECMO
* Since program inception
Advancing the field
We were among the first to perform the nation ’ s first fetoscopic endoluminal tracheal occlusion ( FETO ), a revolutionary CDH treatment that occludes the fetal trachea using a tiny balloon , causing the lungs to fill with fluid and expand . Though still in its trial phase , this procedure has so far demonstrated improved outcomes for severe left-sided CDH . We remain one of just five FDA- and IRB-approved FETO sites .
16 % Our ECMO utilization rate is low
102 Patients with CDH in the last six years
A research group led by Ahmed Marwan , MD , is currently studying contributing factors to the success of tracheal occlusion . This research will help scientists understand the mechanisms involved in lung and pulmonary vascular growth in patients with CDH , and may also contribute to applications promoting lung growth for other medical conditions .
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