Autism Parenting Magazine Issue 71 (Member's Dashboard) | Page 21

COMMUNICATION Amazing Ways AAC Can Improve Communication for Your Child Ewa OMAHEN, PhD One of the most difficult things to cope with as an autism mom was my son Patrick’s inability to speak. I remember hoping and praying that speech was going to develop and reassuring myself that it was a matter of time and the words would emerge by perhaps the next holiday or birthday. I recall having tearful moments while Christmas shopping, when I overheard other children ask- ing their moms for toys on their Santa lists, or while grocery shopping and hearing little voic- es asking for favorite snacks. The speech never came and attempts to solicit it through extensive modeling and by encouraging my son to imitate me only added to the feelings of helplessness and frustration. I know I am not alone. Many parents and families are feeling equally overwhelmed and helpless when they first become aware of their children’s language and other developmental delays and receive the au- tism diagnosis. The current estimate indicates that about 30 percent of children diagnosed with autism spectrum disorder (ASD) will not develop function- al speech. There are thousands of parents out there in search of solutions on how to give their children voices and empower them with self-expression. It has been a long, often trying yet exciting journey for us as a family, with many obstacles and opportu- nities along the way, and a steep learning curve for all involved in teaching our son to express himself. Patrick responded favorably to sign language at the age of six. His first “words” were requests for food and favorite toys. Currently, in addition to some signs, he primarily uses a communication app—Prolqouo- 2Go. He has evolved from a child who used to “hide” under the table at school, shy away from social inter- actions, and act like a defeated and helpless human being to a strong-willed and persistent 15-year-old who loves to communicate and to be heard. Giving Patrick a voice is a work in progress that re- quires ongoing interventions, supports, and collab- oration among everyone involved in his life, includ- ing his family, school team, and private therapists. Over the past few years, we have worked with sev- eral speech pathologists specializing in augmenta- tive and alternative communication. Their guidance regarding assessing needs, setting up the device, establishing appropriate goals and treatment plan, and teaching us as parents how to be effective com- munication partners has been invaluable. Finding a new way to communicate Augmentative and alternative communication (AAC) describes various methods of communication that can help people who are unable to use verbal speech, or have other language difficulties, to com- Autism Parenting Magazine | Issue 71 | 21