BACK of the BOOK
Heard in the Blogosphere
Are Privacy Regulations Preventing Progress?
“Imagine what we could learn today from big-data analysis of everyone’s health records: our conditions, treatments,
and outcomes. Then throw in genetic data, information on local environmental conditions, exercise and lifestyle
habits, and even the treasure troves accumulated by Google and Facebook. … Integrating payment and other data
could transform medical pricing and care provision. And all this information is sitting around, waiting to be used. …
Regulators need to place greater weight on the social value of data for research. … Otherwise, societies less concerned
with individual rights and privacy may seize the opportunities we’re giving up.”
—J.J. Plecs and John H. Cochrane, consultants and researchers in the pharmaceutical and biotechnology industries, on privacy regulations
that keep data from medical researchers, in The Wall Street Journal
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