2015 Emory Eye Magazine | Page 25

A blessing of the birds—and of the families geon, but providing the surgical care and being a part of First-grader Holly Slavin stopped reading, something she Holly’s medical team was truly a rewarding experience,” says normally loved. It aroused no real concern, as her family Hayek. “These conditions are life changing for Holly, her was on Christmas vacation with lots of other distractions. family, and all medical folks that played a role in her life.” Only later did Holly’s mother put together the hints that The Slavin family had an array of caring people in their something was wrong with her daughter’s eye. A few days went by, and mom noticed redness and swelling, lives to help themin dealing with their situation as well as resources to make frequent, fun then a definite protruding of outings with Holly while she Holly’s eye. This was serious. was undergoing her treatments. She was taken to the ER, and This is not the case for many the physician on call thought families. Many are stretched Holly might have had trauma. financially and simply lack the But that was not the case. resources to provide needed When she called Holly’s pedowntime for their children. diatrician, mom Janice Slavin With a strong commitment to was told to take Holly straight help others, the Slavins sought to Children’s Healthcare of to help those families whose Atlanta at Egleston. There, the children must also undergo team biopsied tissue, found a radiation treatments. They malignancy, and started cheformed a foundation to raise motherapy right away. funds for these special families. Oculoplastics specialist “We can toss my hair outside. The birds will feel Aptly named Radiation and orbital tumor surgeon Vacation, it provides insider Brent Hayek was wonderful, blessed to find my hair and use it to make a soft information for parents, tickets says Slavin. “He sat knee to nest for their babies.” - Holly Slavin, two-time to special outings, and a special knee with our family and cancer survivor. treasure box at Emory’s Wintold us quietly and slowly ship Cancer Institute. On the about Holly’s diagnosis, day of each child’s last treatment, he or she gets to ring a special embryonal rhabdomyosarcoma or rhabdo, a cancer of the connective tissue and muscles, such as those of the head and bell lovingly placed at Winship, courtesy of Radiation Vacation. As mom Janice says, we were becoming aware of these neck.” It is rare—with only 350 cases each year in the U.S.— needs as Holly went through treatments. Holly’s comment mostly in children ages 1 to 5. about losing her hair spurred the first fundraiser, “The “He was so caring and informative, it really helped us durBlessing of the Birds.” When mom became sad about Holly’s ing a very frightening situation,” says Slavin of Hayek. And, hair loss, Holly quickly replied, “Oh, we can give my hair to over time, he remained a calming presence in this family’s life. the birds for their nests!” Participants of “The Blessing of In spring 2009, Holly began radiation, in addition to her the Birds” fundraiser were area hair salons who donated $1 chemo. By June, treatments were complete, but in October, per haircut to Radiation Vacation. Over time, several other there was a new, larger tumor. By December, in order to save events throughout Georgia have helped raise money. Holly’s life, Hayek performed an exenteration, removing the Meanwhile, Holly is now a seventh grader, an honor roll eye and all the eye’s orbital contents, including the eyelids. Such a procedure is daunting for any patient, much less a student who won the citizenship award at her school last year. She had no idea when she made that heartfelt remark to child. But when it was time for her bandages to be removed, her mother about her hair loss that a wonderful blessing for Holly wanted to do it herself. All by herself. At the tender others would come out of it for years to come. age of 6, she was brave beyond her years. More information: facebook.com/radiationvacation. “I do a lot of things as an oculoplastic and orbital sur- 2015 | Emory Eye 23